Info regarding Interstitial Lung Disease?

We are waiting on lab results concerning my son and his presumed diagnosis of Interstitial Lung Disease. At around 8 months he began wheezing and crackling and had low oxygen levels (mid to low 80's). He was treated with steroids and inhalers and nothing worked. He was having pulmonary hypertension so he now requires oxygen 24 hours a day. He is now 11 months old. My question is, if you have a child with this disease, which type was it, and how are you treating it? I know some have no known cause and cannot be treated, but I am looking for a little hope. He is very happy and active, so I am taking that as a good sign. We are hoping for some results next week, but some of the labs could take up to a month.